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Well, it was a good long run...

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skincarekathy

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My sister's brain tumor has come back. It's not large, but it's growing and will be. I am working on a care plan with her.

Predictably my parents are not taking it well. Nephew is taking it OK (his "real" mom died/disappeared from his life back in '03 to his way of thinking).

Hope for her sake it grows slow. I don't think she's healthy enough for them to even attempt another surgery.

She's a PITA but she wants to live :)
 
I feel kind of dead to it, really. I feel like I expended all my good adrenaline and excitement on it last time, and this time it feels like just planning a remodeling job or something. Work that needs to be done, but not especially interesting.

Hard to explain.
 
It's not cancer. It's a genetic/congenital thing. She had surgery to remove in 2004 and was clear until this year. However she had her last MRI 5 years ago and the tumor they saw recently is of a size that must have been growing at least 2-3 years, so they just had her wait too long between times. The irony of the thing is even if they had found it sooner, there is no effective therapy except surgery to remove, and they don't do that until it's over 4cm (she is at 1.7cm now).

So, no malpractice, nothing "missed" that was of any consequence. No chemo, no radiation (neither applicable). Only surgery fixes this.

Just rambling! My ma is all up in arms about "malpractice" and suing, and I'm all like, well, no cure but surgery, it's not big enough for surgery, far as I can see no type of "mistake" was made, just we would have known sooner? She could have been enjoying her life less for the past 2-3 years with that threat of doom?

Sorry, I feel a bit mentally ill today.
 
I feel so sorry for you. I know it must be tough for you to have to deal with all this especially at this time of the year. Stay strong and hold your ground. Try and think of positive of things to do. Prayers for your family.
 
skincarekathy said:
It's not cancer. It's a genetic/congenital thing. She had surgery to remove in 2004 and was clear until this year. However she had her last MRI 5 years ago and the tumor they saw recently is of a size that must have been growing at least 2-3 years, so they just had her wait too long between times. The irony of the thing is even if they had found it sooner, there is no effective therapy except surgery to remove, and they don't do that until it's over 4cm (she is at 1.7cm now).

So, no malpractice, nothing "missed" that was of any consequence. No chemo, no radiation (neither applicable). Only surgery fixes this.

Just rambling! My ma is all up in arms about "malpractice" and suing, and I'm all like, well, no cure but surgery, it's not big enough for surgery, far as I can see no type of "mistake" was made, just we would have known sooner? She could have been enjoying her life less for the past 2-3 years with that threat of doom?

Sorry, I feel a bit mentally ill today.
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Sorry to hear the tumor is back. one would hope knowing she had the tumor before that she was living life to the fullest from that point on. Hope all works out the best it can and she is never in to much pain even if it means she goes quickly. no one should have to suffer
 
Sorry to hear about it. I know you mentioned she might not be healthy enough for another surgery now. Since its too small for surgery maybe sometime in next couple years (or more hopefully if it grows slow) she will be strong enough for another try at it. :grouphug:
 
Kathy I'm sorry to hear about this. I can a little bit relate to how I think I understand you to be feeling.
Good luck with coping and probably dealing with difficult family matters.
Don't forget we're here for you to vent.
:huggy:
 
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